We are a new group, founded in 2021. We currently have over 140 members. 

Our group exisits to offer support and friendship to those affected.  You can be assured of a friendly welcome from people who understand the challenges that living with these conditions brings.  

We are a social and mutual support group, carers and family members are welcome too! 


We offer our members:

  • A private Whatsapp group for general updates - useful for those members who do not use social media. 
  • Signposting for local services, benefits and employment advice.
  • Please note, we do not offer advice on medication or other treatments.