Understanding the Diagnosis of Endometriosis
If you're seeking a diagnosis for endometriosis, you're not alone — and you're in the right place. This guide explains how endometriosis is diagnosed, what tests and scans you may undergo, and how to advocate for yourself throughout the process.
Getting diagnosed with endometriosis may take a signigicant amount of time. On average, women suffering from this condition may wait between 8 to 12 years for a diagnosis. Unfortunately, the situation is even more challenging for black women, with research showing they’re 50% less likely to be diagnosed with endometriosis compared to white women[1].
[1] https://www.wrh.ox.ac.uk/news/endometriosis-black-women-continue-to-receive-poorer-care-for-the-condition
You Are Your Own Best Advocate
We’ve included a practical checklist to help you:
- Prepare for an endometriosis consultation
- Get the most from your appointment with your GP
- Ask for a second opinion if needed
Where to Begin
Step 1: Visit Your GP
While a GP cannot confirm a diagnosis of endometriosis, they can begin the process by assessing your symptoms and referring you to a specialist. Early support and treatment can make a big difference.
Your GP may carry out:
- A physical examination, including a possible internal vaginal exam
- Blood tests
- A detailed symptom discussion — so it's important to share as much information as possible
Talking to Your GP About Symptoms
Don't hesitate to speak openly with your GP. Common symptoms of endometriosis include:
- Chronic pelvic pain
- Painful periods that disrupt daily life
- Pain during or after sex
- Pain when urinating or during bowel movements
- Difficulty getting pregnant
Remember, you may not experience all of these — endometriosis affects each person differently.
Tip: Keep a pain and symptom diary. Document how your symptoms affect your life. This will help your GP understand what you're experiencing and support faster diagnosis and treatment.
It’s completely normal to feel overwhelmed or emotional during these appointments — and there’s no shame in that. You’re allowed to request a chaperone for physical exams — ask for one if not offered.
We've created a consultation checklist to help you feel more prepared and in control. If you need extra support, don’t hesitate to contact us: info@relevantpartners.co.uk
Will I Get a Diagnosis from My GP?
A confirmed diagnosis of endometriosis currently requires a procedure called a laparoscopy. However, your GP may:
- Refer you to a gynaecologist
- Schedule an ultrasound scan
- Prescribe pain relief or hormone treatments in the meantime
What If My GP Doesn’t Take My Symptoms Seriously?
Your symptoms are real — and deserve to be taken seriously.
If you feel dismissed:
Option 1: Ask for a Referral
Even if your GP isn’t a specialist, they can refer you to a gynaecologist. You can also find GPs with an interest in endometriosis at www.bsge.org.uk via the Endometriosis Centres link.
Option 2: Request a Second Opinion
You have the right to seek a second opinion. If you're registered at a multi-GP practice, you can request to see another doctor — or consider switching practices altogether. Please speak to us before taking this step for further guidance.
Tests and Scans for Endometriosis
Once referred, your gynaecologist may recommend one or more of the following tests:
Laparoscopy (Definitive Diagnosis)
A surgical procedure where a small camera (laparoscope) is used to look inside your abdomen. A small tissue sample (biopsy) may be taken.
Additional Tests:
- Urine test – to rule out infection
- Pelvic ultrasound – checks internal organs
- Transvaginal ultrasound – uses a probe for detailed imaging
- MRI scan – helpful for spotting deep endometriosis, especially around the bowel or bladder
Not all forms of endometriosis show up on scans — so a negative scan doesn’t rule it out.
Types of Diagnosed Endometriosis:
- Superficial – on organ surfaces
- Deep – inside organ muscles (e.g. bowel, bladder)
Rarely, endometriosis may be found outside the pelvis, such as in the chest.
Treatment Options
Although there's no cure for endometriosis, there are several treatments to help manage symptoms.
Medications
- Pain relief – such as paracetamol or ibuprofen
- Hormonal treatments – like the combined contraceptive pill, to regulate or stop periods
Surgery
May be offered if:
- Symptoms are severe
- Other treatments aren’t effective
- Fertility is affected
Surgery options include:
- Removal of endometriosis or cysts
- Hysterectomy (womb removal)
- Oophorectomy (ovary removal)
- Removal of affected bowel/bladder areas
Repeat surgeries may be needed if symptoms return or scarring causes complications.
Support for Living with Endometriosis
Endometriosis can affect every part of your life — physically, emotionally, and socially. You're not alone, and there is support available.
Support options include:
- Long-term pain management advice
- Fertility support
- Mental health support for low mood or anxiety
- Community support and peer networks
Helpful Resources
Final Thought
Endometriosis is different for everyone — and navigating it can be a journey. Diagnosis and treatment may take time, but with the right support and knowledge, you can take charge of your health.
Please contact us at info@relevantpartners.co.uk if you wish to speak to someone about this.
Disclaimer: The content of this webpage is intended for informational purposes only. We strongly encourage our readers to use this information only as a preliminary resource. We disclaim any liability for the decisions made by anyone based on this information.