Our mission is to provide support to anyone who has Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS).

 

Our purpose is to reduce isolation, provide support and information to our members, reach new members, raise public awareness of ME and its devastating effect on people and their families. We provide training sessions locally for medical, education, social and other welfare support services to increase understanding of ME.

 

We are also involved in campaigning for better local and domiciliary services for people with this condition and in supporting biomedical research into ME.

 

We offer members information and support through:

  • Newsletter with four issues per year plus email news six times per year
  • Website: www.richmondandkingstonmegroup.org.uk
  • Facebookpage: www.facebook.com/RichmondandKingstonMEGroup
  • Twitter: @randkmegroup
  • Private (closed) email chat group in Google Groups
  • Coffee meetings in the mornings and afternoons for members and their carers
  • Benefits support and signposting to professional help
  • Signposting to local services and support
  • Private contact list where you can define how (eg telephone, text, email, meet-up), how much and when to be available, for friendship and mutual support
  • Periodic fundraising and ME awareness raising events
  • Occasional one off events like pub meet ups, lectures and talks on aspects of ME. Some meet-ups recently have been to share experiences of meditation and guided relaxation.
  • Telephone helpline
  • Library

 

Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) can affect anyone, at any age, and from any ethnic group.

 

A quarter of a million people, 25 per cent of whom are children, are estimated to have ME in the UK; 25 per cent of them are so severely affected they are housebound or bedbound; and 77 per cent of adults have lost their job.

 

Common symptoms include severe exhaustion, unrefreshing sleep, poor concentration, headache, muscle pain and digestive problems.

 

People with ME still face ignorance and prejudice.

 

There is no cure and more biomedical research is needed to find effective treatments.

 

We all have or care for someone with ME/CFS; therefore, if you join, you will be able to meet, speak to or email with people who have similar issues and can share knowledge and opinions based on their experiences. You will also have access to our library resources and signposting to services which may be able to assist with a wide range of issues from supported recreational activities to disability benefits.

 

To join our group please contact us via e-mail on randkmegroup@yahoo.co.uk or by phone on 07984 860 309 (answerphone) and we will return your call.

 

We are a not-for-profit organisation recognised as charitable by HMRC for tax purposes and validated by Localgiving Foundation. We are not registered with the Charity Commission in England and Wales because our turnover is less than £5,000 per year.

 

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